Syllabus del corso
Obiettivi
Il corso elettivo: “oltre la malattia ematologica: il paziente e le sue fragilità” si propone di fornire agli studenti infermieri le conoscenze cliniche, terapeutiche e relazionali avanzate per un'assistenza olistica al paziente affetto da malattie onco-ematologiche, comprendendo e gestendo le sue molteplici fragilità, dalla diagnosi al trapianto, per migliorarne l'erogazione delle cure e la qualità di vita.
Gli obiettivi specifici, formulati in accordo con i Descrittori di Dublino, sono i seguenti:
- Conoscenza e Comprensione
Conoscere la clinica, le procedure terapeutiche (come chemioterapia e trapianto di cellule staminali) e le molteplici fragilità che caratterizzano il paziente onco-ematologico. - Capacità di Applicare Conoscenza e Comprensione
Pianificare e implementare interventi assistenziali specifici e basati sull'evidenza per la gestione del paziente onco-ematologico, applicando efficaci approcci relazionali e comunicativi. - Autonomia di Giudizio
Sviluppare un pensiero critico per valutare le complesse condizioni del paziente onco-ematologico e collaborare attivamente nel team multidisciplinare per una presa in carico personalizzata. - Abilità Comunicati
Comunicare in modo empatico, chiaro e professionale con pazienti, familiari e il team sanitario, documentando accuratamente l'assistenza erogata. - Capacità di Apprendimento
Dimostrare autonomia nell'aggiornamento continuo e nella riflessione critica sulla propria pratica per migliorare costantemente l'assistenza al paziente onco-ematologico.
Contenuti sintetici
Approccio clinico assistenziale al paziente ematologico partendo da un’analisi del contesto organizzativo.
Approccio alla particolare fragilità del paziente ematologico.
Approfondimento delle principali patologie ematologiche
Programma esteso
Importanza delle procedure diagnostiche e terapeutiche ai fini della diagnosi (Aspirato midollare; biopsia Ossea; Rachicentesi medicata; aferesi terapeutica)
Il trapianto di midollo (allogenico e Autologo);
La comunicazione e la relazione con l’esterno e i familiari del paziente; Il supporto psicologico a pazienti, familiari e caregiver.
L’evento fine vita come esito o complicanza della malattia;
La presa in carico del paziente dopo la dimissione
Prerequisiti
Iscrizione al 2^ e 3^ anno di corso di Laurea In Infermieristica
Modalità didattica
La lezione si svolge in modalità erogativa in presenza attraverso lezione frontale, videoproiezione, discussione e lavori di gruppo
Materiale didattico
Amonoo, H. L., El-Jawahri, A., Celano, C. M., Brown, L. A., Harnedy, L. E., Longley, R. M., Onyeaka, H. K., Healy, B. C., Cutler, C. S., Pirl, W. F., Lee, S.J., & Huffman, J. C. (2021). A positive psychology intervention to promote health outcomes in hematopoietic stem cell transplantation: the PATH proof- of-concept trial. Bone marrow transplantation, 56(9), 2276–2279
Avvisati, G. e Mandelli, F. 2019. Ematologia di Mandelli. 2 a ed. Padova: Piccin.
Berger, O., Grønberg, B. H., Loge, J. H., Kaasa, S., & Sand, K. (2018). Cancer patients' knowledge about their disease and treatment before, during and after treatment: a prospective, longitudinal study. BMC cancer, 18(1), 381
Fenech, A. L., Van Benschoten, O., Jagielo, A. D., Ufere, N. N., Topping, C., Clay, M., Jones, B. T., Traeger, L., Temel, J. S., & El-Jawahri, A. (2021). Post- Traumatic Stress Symptoms in Hematopoietic Stem Cell Transplant Recipients. Transplantation and cellular therapy, 27(4), 341.e1–341.e6
Gallegos, R., Kogelman, A., Wagner, M., Cloud, A., Olson, M., Robideau, K., Patrick, L., Comfort, J., & Hirko, K. (2019). Chemotherapy Education: An Interprofessional Approach to Standardizing Processes and Improving Nurse and Patient Satisfaction. Clinical journal of oncology nursing, 23(3), 309–314.
Goerling, U., Faller, H., Hornemann, B., Hönig, K., Bergelt, C., Maatouk, I., Stein, B., Teufel, M., Erim, Y., Geiser, F., Niecke, A., Senf, B., Wickert, M.,Büttner-Teleaga, A., & Weis, J. (2020). Information needs in cancer patients across the disease trajectory. A prospective study. Patient education and counseling, 103(1), 120–126
Guimarães Ferreira da Silva, D., Pessoa de Souza, A., de Freitas Martins, T. C., Martins Pedrosa, T., Drumond Muzi, C., & Mendonça Guimarães, R. (2017). Quality of information given to surgical patients with abdominal cancer. Investigacion y educacion en enfermeria, 35(2), 221–231
Kim, I. R., Jang, S. Y., Shin, H. S., Choi, H. J., Jung, C. W., Yoon, S. S., Kim, J. S., Kim, S. J., Kim, K., Kim, W. S., Lee, C. H., Kang, D., & Cho, J. (2020). Association between sexuality knowledge and sexual dysfunction in hematopoietic stem cell transplantation patients and their partners. Patient education and counseling, 103(8), 1630–1636
Page, C., Cordon, C., & Wong, J. (2019). Evaluating the effectiveness of a mnemonic to guide staff when providing patient education to autologous hematopoietic stem cell transplant patients. Canadian oncology nursing journal = Revue canadienne de nursing oncologique, 29(2), 123–131.
Ridgeway J. A. (2018). Interdisciplinary Educational Checklist for Allogeneic Stem Cell Transplant Patients. Journal of the advanced practitioner in oncology, 9(6), 646–654
Associazione Italiana Contro Leucemie Linfomi e Mieloma (n.d) https://www.ail.it/patologie-e-terapie/terapie/il-trapianto-allogenico Data di consultazione 29 agosto 2021
Leukemia and Lymphoma Society (2019) Blood and Marrow Stem Celle Transplantation Guide. Consultabile online: https://www.lls.org/publications
Periodo di erogazione dell'insegnamento
Secondo semestre
Orario di ricevimento
Su appuntamento
Sustainable Development Goals
Aims
The elective course, “Beyond Hematologic Disease: the Patient and His Frailties,” aims to provide nursing students with advanced clinical, therapeutic and relational knowledge for holistic care of the patient with oncohematologic diseases, understanding and managing his or her multiple frailties, from diagnosis to transplantation, to improve care delivery and quality of life.
The specific objectives, formulated in accordance with the Dublin Descriptors, are as follows:
-
Knowledge and Understanding
Know the clinic, therapeutic procedures (such as chemotherapy and stem cell transplantation), and the multiple frailties that characterize the onco-hematologic patient. -
Ability to Apply Knowledge and Understanding
Plan and implement specific, evidence-based care interventions for the management of the oncology-hematology patient, applying effective interpersonal and communication approaches. -
Autonomy of Judgment
Develop critical thinking to assess the complex conditions of the oncohematology patient and actively collaborate in the multidisciplinary team for personalized care. -
Skills Communicated
Communicate empathetically, clearly and professionally with patients, family members and the healthcare team, accurately documenting the care provided. -
Ability to Learn
Demonstrate autonomy in continuous updating and critical reflection on one's practice to continuously improve the care of the onco-hematology patient
Contents
Clinical approach to the haematological patient based on an analysis of the organizational context.
Approach to the particular fragility of the haematological patient.
Study of the main haematological pathologies
Detailed program
Importance of diagnostic and therapeutic procedures for diagnosis (Bone Marrow Aspiration; Bone Biopsy; Medicated Rachicentesis; Therapeutic apheresis)
Bone marrow transplantation (allogeneic and autologous);
Communication and relationship with the outside and family members of the patient; Psychological support to patients, family members and caregivers.
The end-of-life event as outcome or complication of the disease;
Taking charge of the patient after discharge
Prerequisites
Enrolment in the 2nd and 3rd year of the Degree Program in Nursing
Teaching form
The lesson is held in a paying mode in presence through frontal lesson, video projection, discussion and group work
Textbook and teaching resource
Amonoo, H. L., El-Jawahri, A., Celano, C. M., Brown, L. A., Harnedy, L. E., Longley, R. M., Onyeaka, H. K., Healy, B. C., Cutler, C. S., Pirl, W. F., Lee, S.J., & Huffman, J. C. (2021). A positive psychology intervention to promote health outcomes in hematopoietic stem cell transplantation: the PATH proof- of-concept trial. Bone marrow transplantation, 56(9), 2276–2279
Avvisati, G. e Mandelli, F. 2019. Ematologia di Mandelli. 2 a ed. Padova: Piccin.
Berger, O., Grønberg, B. H., Loge, J. H., Kaasa, S., & Sand, K. (2018). Cancer patients' knowledge about their disease and treatment before, during and after treatment: a prospective, longitudinal study. BMC cancer, 18(1), 381
Fenech, A. L., Van Benschoten, O., Jagielo, A. D., Ufere, N. N., Topping, C., Clay, M., Jones, B. T., Traeger, L., Temel, J. S., & El-Jawahri, A. (2021). Post- Traumatic Stress Symptoms in Hematopoietic Stem Cell Transplant Recipients. Transplantation and cellular therapy, 27(4), 341.e1–341.e6
Gallegos, R., Kogelman, A., Wagner, M., Cloud, A., Olson, M., Robideau, K., Patrick, L., Comfort, J., & Hirko, K. (2019). Chemotherapy Education: An Interprofessional Approach to Standardizing Processes and Improving Nurse and Patient Satisfaction. Clinical journal of oncology nursing, 23(3), 309–314.
Goerling, U., Faller, H., Hornemann, B., Hönig, K., Bergelt, C., Maatouk, I., Stein, B., Teufel, M., Erim, Y., Geiser, F., Niecke, A., Senf, B., Wickert, M.,Büttner-Teleaga, A., & Weis, J. (2020). Information needs in cancer patients across the disease trajectory. A prospective study. Patient education and counseling, 103(1), 120–126
Guimarães Ferreira da Silva, D., Pessoa de Souza, A., de Freitas Martins, T. C., Martins Pedrosa, T., Drumond Muzi, C., & Mendonça Guimarães, R. (2017). Quality of information given to surgical patients with abdominal cancer. Investigacion y educacion en enfermeria, 35(2), 221–231
Kim, I. R., Jang, S. Y., Shin, H. S., Choi, H. J., Jung, C. W., Yoon, S. S., Kim, J. S., Kim, S. J., Kim, K., Kim, W. S., Lee, C. H., Kang, D., & Cho, J. (2020). Association between sexuality knowledge and sexual dysfunction in hematopoietic stem cell transplantation patients and their partners. Patient education and counseling, 103(8), 1630–1636
Page, C., Cordon, C., & Wong, J. (2019). Evaluating the effectiveness of a mnemonic to guide staff when providing patient education to autologous hematopoietic stem cell transplant patients. Canadian oncology nursing journal = Revue canadienne de nursing oncologique, 29(2), 123–131.
Ridgeway J. A. (2018). Interdisciplinary Educational Checklist for Allogeneic Stem Cell Transplant Patients. Journal of the advanced practitioner in oncology, 9(6), 646–654
Associazione Italiana Contro Leucemie Linfomi e Mieloma (n.d) https://www.ail.it/patologie-e-terapie/terapie/il-trapianto-allogenico Data di consultazione 29 agosto 2021
Leukemia and Lymphoma Society (2019) Blood and Marrow Stem Celle Transplantation Guide. Consultabile online: https://www.lls.org/publications
Semester
Second semester
Assessment method
Frequency
Office hours
By appointment
Sustainable Development Goals
Staff
-
Marco Marzano
